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Post by Thomas Eversole on Jul 11, 2016 8:16:57 GMT -6
Thank you.
I just signed this thing saying that I'm aware that this chemo can CAUSE cancer. That's crazy.
I'll have a needle in my chest giving me this stuff until Wednesday. At least they gave my wife a kit so she can uninstall the pump herself.
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Post by Thomas Eversole on Jul 11, 2016 10:53:27 GMT -6
Kinda depressing that on this chemo ward, I'm the youngest patient by 20-30 years I'm guessing...
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Post by Thomas Eversole on Jul 11, 2016 12:22:49 GMT -6
That cold sensitivity they told me about is BRUTAL. Took a swig of my unsweetened tea after it sat in ice for a while and it felt like I swallowed 9 thumb-tacs.
I get why they put so much emphasis on room temperature drinks.
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Post by Thomas Eversole on Jul 11, 2016 20:44:58 GMT -6
Figured out something that's actually good about chemo. Flys and mosquitos won't come near me. My wife and I were both sweating while jogging at the park (been exercising a lot lately) and they were eating her alive, but wouldn't even land on me. I've never had that happen in my life. That being said, they told my wife and I today that we need to wash our clothes separately. If I wash my sweaty shirt with her clothes while this is coming out of my pores, it could make Kaytlyn sick.
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Post by Thomas Eversole on Jul 13, 2016 16:21:15 GMT -6
Man, I really feel like crap today. Just really bluh all over. I've got 3 different nausea medicines (a chewable, a prescription and God's green) and I'm having to use all 3 to keep from calling dinosaurs. (calling dinosaurs = slang for throwing up)
Slept 6 hours last night. Woke up at 8am and by noon, I was extremely tired and slept 4 more hours. At least that freakin' needle is out of my chest now and won't have to get put back in until the 25th of July.
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Post by Thomas Eversole on Jul 16, 2016 15:23:56 GMT -6
I felt a little better today. I walked for 15 minutes this morning and ate 2 cans of sardines. Wanna know what I did after that?
I slept until 4pm.
Geez...
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Post by Thomas Eversole on Jul 28, 2016 2:51:52 GMT -6
God, please carry me through this bout of chemo, so I can get back to doing Your will.
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Post by Thomas Eversole on Aug 6, 2016 22:36:27 GMT -6
I'm in the emergency room. I can't keep anything down and am having severe stomach pains. Please pray for me.
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Post by nocturnaliridescence on Aug 6, 2016 23:20:53 GMT -6
Praying, Thomas. Me and some people I know personally.
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Post by Thomas Eversole on Aug 7, 2016 1:35:41 GMT -6
I have a partial bowel obstruction, at the sight where my ostomy was reversed. My team of doctors is trying to decide,
1) pump me full of fluids and maybe it will work itself out. 2) Shovel a tube down my throat that decompressed my stomach and moves things along 3) Endoscopy. They'd put my in twilight and scope the back door and try to knock it loose. 4) Cut me open to remove the obstruction
EDIT: Looks like #2 is what they're starting with.
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Post by Thomas Eversole on Aug 7, 2016 2:56:07 GMT -6
Oh my God that tube is fucking hell. I feel it every time I swallow and my nose is bleeding.
Lord, please carry me through this.
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Post by Thomas Eversole on Aug 9, 2016 6:27:42 GMT -6
I'm out of the hospital now. I wasn't the best patient - I'll spare the details, but its good to be free. (Being in the hospital does remind me of being in a very clean jail.)
I appreciate the prayers guys.
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Post by Bartimaeus on Aug 9, 2016 9:00:54 GMT -6
Praying for you now, Thomas.
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Post by Thomas Eversole on Aug 14, 2016 19:25:49 GMT -6
For the past 10 hours, I've been having bowel obstruction symptoms again. (Intense stomach pangs and vomiting)
I really don't want this to turn into another 3 day cluster at the hospital. So far, I've kept water down and I have had some air move.
Please pray that I can pull through this on my own. ...and soon!
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Post by nocturnaliridescence on Aug 14, 2016 20:04:23 GMT -6
Praying, Thomas!
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Post by Thomas Eversole on Aug 15, 2016 5:31:51 GMT -6
I think I'm out of the woods. I'm pretty sore from yesterday, but at least I had a couple bm's and that stabbing pain with vomiting has stopped.
Need to definitely talk to my surgeon. Last time, it was sweet corn. This time, my wife and I can't figure out why this happened again. I shouldn't be having weekly bowel obstructions.
What did help was the prayer. I even fell asleep praying.
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Post by Thomas Eversole on Aug 16, 2016 11:10:04 GMT -6
No chemo today. They didn't think it would be safe because of the recent obstructions, and also chemo would yield different results for the obstruction testing I have to do this Friday.
They want me to have medical cannabis so I can be out without getting sick. (Since I won't tote around the buds I've been self medicating with) They brought it up and started the paperwork.
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Post by Thomas Eversole on Aug 23, 2016 3:18:59 GMT -6
Sunday marked the first day my surgical wound healed. Like, no more packing or gauss over it. If you recall the horrific picture I posted earlier on the thread, that has all closed and scabbed over.
My stomach is a scarred up mess. My wife calls them my battle scars.
This round of chemo is hitting me hard. I fell asleep during the infusion and woke up feeling completely drained... like I almost needed a wheelchair to get to the vehicle to go home.
...and of course the steroids are keeping me awake now. At least they agreed to bump up my nausea medicine and give another infusion of them when I get this needle out of my chest on Wednesday.
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Post by Thomas Eversole on Aug 27, 2016 8:46:50 GMT -6
Man, I have felt like CRAP. Since the middle of the week, I've been sleeping most of the time - basically doing 2 3 hour naps during the day for the past several days... then this really strange awake feeling.
I feel like its starting to diminish now. I had to call off work this morning, but then again, I always call off work the weekend of my chemo infusion. It would be a record if I felt well enough to work tomorrow...
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Post by Thomas Eversole on Sept 9, 2016 5:54:44 GMT -6
Sick again from chemo. At least I'm halfway done with my treatments.
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Post by Kerrick on Sept 9, 2016 10:06:27 GMT -6
Gosh it seems like it's been a long first half of the chemo but it's encouraging to hear you're past the half-way mark; that's a big milestone.
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Post by Thomas Eversole on Sept 9, 2016 12:10:42 GMT -6
Yeah. That's something to help me along. Knowing how much I have left doesn't make getting through today any easier. I can expect to be sick into next week...
This just sucks.
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Post by exo on Sept 11, 2016 7:53:48 GMT -6
I'm sure it does.
Hang tough, brother!
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Post by nocturnaliridescence on Sept 11, 2016 22:28:54 GMT -6
Man, and just having smells like cat food bothering you (as mentioned in the Shoutbox) on top of everything else. I definitely feel for you through all this. I didn't realize chemo was so problematic.
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Post by Thomas Eversole on Oct 9, 2016 17:04:50 GMT -6
I've felt amazingly rotten today. I called off work, I went back to sleep, slept until after 430pm... ...my hands have been killing me, and them aching kept me up most of last night. I've had them hurt before, on and off. I'm fortunate to not see symptoms involving loss of control.
My wife thinks we need to tell my oncologist to back off on the Oxyplatin, since that's the chemo that causes permanent nerve damage. I'd appreciate further prayers because of this and anxiety about tomorrows infusion...
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Post by Bartimaeus on Oct 9, 2016 18:57:30 GMT -6
Praying for you, Thomas.
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Post by nocturnaliridescence on Oct 9, 2016 19:53:35 GMT -6
Praying, Thomas
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Post by Thomas Eversole on Oct 9, 2016 21:02:31 GMT -6
Thanks guys. I appreciate it.
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Post by Thomas Eversole on Oct 10, 2016 8:45:52 GMT -6
They're reducing my Oxyplatin chemo (the stuff that makes my hands hurt) by almost half (85mg before, now it's 45mg)
I'm hoping that with this, coupled with my cold pressed cranberry juice strategy, that I'll have most of next week to get down to music...
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Post by Thomas Eversole on Oct 11, 2016 5:35:57 GMT -6
I am so blessed to be married to Kaytlyn. She's such a rock. She's sat right beside me at every chemo infusion. It can take up to 8 hours to get all those initial fluids in, and she's always been there with me, even if she has to work that night.
She's even rearranged her plans as not to miss a session to, as she puts it, fight along side of me. God I love her.
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