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Post by Thomas Eversole on Apr 23, 2016 22:45:55 GMT -6
I complained that I couldn't pee (it had been 6 hours) and the doctors respond to this by pushing fluids into me as fast as they can, then left me in a room. I feel like I'm going to burst.
This is not medical practice, it is torture.
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Post by Deepfriar on Apr 23, 2016 22:52:11 GMT -6
Eh, is that some sort of gameplan to force it out of you?
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Post by Thomas Eversole on Apr 24, 2016 0:16:46 GMT -6
I seriously doubt it. My wife is all for what her team accomplishes, but she thinks this was even unacceptable.
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Post by Deepfriar on Apr 24, 2016 0:25:48 GMT -6
Thanks for all the updates. Have they called in doctors? What are they doing to remedy the situation?
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Post by barabbas on Apr 24, 2016 0:42:21 GMT -6
Praying for you right now . . .
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Post by Thomas Eversole on Apr 24, 2016 7:02:37 GMT -6
Wow. Doctor Hoffman, who helped with my surgery said I can plan on leaving today. As horrible as my night was yesterday, this morning has been awesome!
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Post by Deepfriar on Apr 24, 2016 9:09:58 GMT -6
Oh man you don't know how happy that makes me Thomas lol. I did not doubt in the Lord I knew you would be fine but to hear talk of going home already is exceeding above what I could ask or think! I stayed up until 5 AM replying to you and waiting to hear news. I'm so glad to hear this.
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Post by barabbas on Apr 24, 2016 9:35:52 GMT -6
That is really fantastic news, Thomas! We'll continue to pray for your recovery and look forward to hearing about where things stand with your treatment.
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Post by Thomas Eversole on Apr 24, 2016 9:49:05 GMT -6
Me too. I seriously thought I was going to die whenever I had to pee, couldn't, and they ordered me pumped full of new fluids despite this.
...but I've been emotionally volatile regarding this whole trip.
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Post by Bartimaeus on Apr 24, 2016 16:50:39 GMT -6
Going home is a big deal! It's always better to be able to sleep in your own bed. The recovery after surgery is ALWAYS the hardest part. But God is faithful and won't put you through things you can't handle. Praise God!
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Post by Thomas Eversole on Apr 24, 2016 19:32:15 GMT -6
Thank you!
Not feeling too bad. I'm home. Had a little bit of a fever this afternoon, but that went away. Using some little 3lb weights to help with the referred pain in my arms. I move pretty slow, but I can take stairs and get into bed by myself. I can also empty my JP drain, foley and ileostomy by myself. It's going to take some time and a lot of pain pills, but I'm sure I'll feel good enough in a few weeks to get off my meds.
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Post by Deleted on Apr 24, 2016 19:51:50 GMT -6
It's great to know that you're home. I hope your recovery continues to go well.
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Post by nocturnaliridescence on Apr 24, 2016 21:39:40 GMT -6
Very great to hear that you're home. Been praying, and will continue to - recovery from any medical procedure is never fun.
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Post by Thomas Eversole on Apr 27, 2016 9:59:21 GMT -6
I feel like every day the pain gets less and less. When I first got home, I was only able to sit on the edge of chairs and for a short duration - now, I can sit in any chair regularly, for a while and be fine.
When they did my surgery, they did a Foley catheter. This is a tube inserted through my penis into my bladder that collects urine in a bag. (con - its sensative, pro - makes "peeing" unnecessary. After 3 days in the hospital, they took it out in hopes that I could pee normally, but I was too swollen from the surgery, so they had to put another catheter back in.
I'm still wearing that even to this day. This catheter is supposed to come out before my doctors appointment tomorrow.
Please pray that the swelling has gone down enough that I can urinate on my own.
Obviously, not being able to pee at all is not something that can happen - and if no one has ever had a tube shoved down their penis into their bladder, its pretty horrible each time they have to put one in. (its still fairly horrible getting it taken out) I really don't want to have to have a 3rd one put in because I still can't urinate on my own...
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Post by nocturnaliridescence on Apr 27, 2016 10:24:26 GMT -6
Ouch.
Will be praying.
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Post by tolencual on Apr 27, 2016 20:35:22 GMT -6
Good to see you're out of there brother. We're still praying for your quick and full recovery!
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Post by Deepfriar on Apr 27, 2016 22:05:49 GMT -6
Glad to hear your recovery is going as well as expected. Thanks for keeping us in the loop and I'll continue to pray for you!
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Post by Kerrick on Apr 28, 2016 9:18:08 GMT -6
Will definitely be continuing to pray but I am so thankful that things are indeed improving!
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Post by Thomas Eversole on Apr 28, 2016 11:42:49 GMT -6
Today has been hell. I couldn't pee so urology had to put in another Foley catheter. They took out my top staples and now the hematoma is pushing through, splitting the wound. This could mean anywhere from more bandage changes to another surgery TODAY.
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Post by Deepfriar on Apr 28, 2016 11:53:07 GMT -6
ugh *praying*
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Post by Thomas Eversole on Apr 28, 2016 13:20:09 GMT -6
My surgeon was able to suck out 200ml of the hematoma (blood clot) that he could see and packed the wound. It fits an entire whole roll of Gause in it, so it's a huge wound. The muscle is still intact so it looks worse than it is and will need packed twice a day. I don't need a surgery today to fix anything.
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Post by barabbas on Apr 28, 2016 14:10:12 GMT -6
So glad you don't need surgery today. Will continue to pray.
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Post by Thomas Eversole on May 2, 2016 15:18:43 GMT -6
I haven't posted in a few days. This relentless pain is breaking me spiritually. I no longer pray for relief and instead pray for Jesus to just take me home because I can't take this anymore. I've also vocalized to my brother and my wife that I want to kill myself. I don't think typing "hematoma" adequately describes the pain I'm in. This pic will probably help those speculating my pain. Warning, its graphic. You can probably gauge from my belly button how large this is. Even worse, over the weekend, my ostomy leaked twice a day into this wound. My skin around the ostomy has broken down and the bags no longer stick, and having literal shit leak into the wound fucking hurts. Had a temperature of almost 103° today, no fucking surprise. I've gotten annoyed with people praying for me, because its not fucking working. Why can I pray and albums just happen, but NOTHING happens when I pray for pain? Actually, the pain has actually gotten worse. I don't give a shit about anything when I hurt this much. Its a good thing I don't own a gun.
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Post by Thomas Eversole on May 4, 2016 12:23:41 GMT -6
Just got home after being admitted to the hospital on Monday. I was pretty dehydrated and had an infection. I got pumped full of fluids and antibiotics and this is the best I've felt since surgery. Still in a decent amount of pain, but pain from a surgical wound is way more manageable than from an infection.
I know that last post was hard to follow, and sorry if I scared or offended anyone. I appreciate the PMs from those offering their condolences. My faith in God or the power of prayer will never waver, but when prayer doesn't work the way I think it should, I get beyond pissed. Obviously that's one of my flaws.
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Post by Deepfriar on May 4, 2016 13:29:57 GMT -6
You didn't scare or offend me Thomas my heart went out for you but I had no words. You have been in my prayers though and your health misfortune grieves me deeply. The CBM community loves you and we're here for you dude.
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Post by Deleted on May 4, 2016 15:09:20 GMT -6
I'm glad to know that you're doing a bit better now. I wish I could have responded to your last post, but I didn't know what to say.
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Post by Thomas Eversole on May 4, 2016 21:32:02 GMT -6
I know guys. I didn't expect any replies to that. It was more about my relief taking a massive negative dump (ALL my negative feelings and emotions) and just getting it out than providing an update or looking for feedback.
I'm a very transparent person (publicly transparent) and there's psychological healing in that. ...for me.
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Post by Kerrick on May 5, 2016 4:48:06 GMT -6
I'm just glad to see you alive and kicking. You've got plenty of fight in you yet and that is good to see! I'm still praying for you and am greatly looking forward to when this phase is over and in the past.
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Post by blake on May 6, 2016 7:25:38 GMT -6
I'm sorry to hear about all of that. It sounds beyond awful, and I hope the doctors can get it under control soon so the pain is at least manageable. Just remember to stay hopeful, and you have many people who care about you.
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Post by Thomas Eversole on May 6, 2016 9:20:46 GMT -6
I'm just glad to see you alive and kicking. You've got plenty of fight in you yet and that is good to see! I'm still praying for you and am greatly looking forward to when this phase is over and in the past. Me too. This surgery took out the cancer, hooked back intestines in its place and installed a temporary ileostomy (poop sack) so what's hooked back can heal. (without waste passing through it) Thing is, I'll have another surgery to reverse the ileostomy. Less intense, but I'll be going through all of this again. Not to mention, the surgical install of a port for 6 months of IV chemo at some time. Its disheartening to say the least that I've still got surgeries to go and I could have the same problems that I had with my first one. Its extremely hard to stay positive. I feel like the pain has COMPLETELY prevented me from the gratitude of so many people caring, praying and me actually being cancer free right now. That sucks.
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