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Post by Thomas Eversole on May 12, 2016 16:39:56 GMT -6
Slight change of plans for my catheter. Its getting pulled tomorrow. If I STILL can't pee on my own, I got to go in to my urologist and get another one. If I still can't pee after a week, they've got to run a scope up there to see what the problem is. (I really don't want a scope up my pee hole.)
Please pray that I can pee tomorrow! PLEASE!!!
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Post by Bartimaeus on May 12, 2016 20:39:13 GMT -6
Praying! If they need do the camera, at least they'll use an anesthetic!
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Post by Thomas Eversole on May 12, 2016 21:01:13 GMT -6
Thank you!
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Post by Kerrick on May 13, 2016 4:21:20 GMT -6
Praying!!!
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Post by Thomas Eversole on May 13, 2016 11:31:32 GMT -6
It wasn't pretty. (Squatting in the tub with hot water and pushing) ...but... I peed!!!!!!!!!!!!!!!!!!!!
Praise God!!!
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Post by Bartimaeus on May 13, 2016 12:50:51 GMT -6
Praise the Lord, Thomas!
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Post by Deepfriar on May 13, 2016 13:01:48 GMT -6
It wasn't pretty. (Squatting in the tub with hot water and pushing) ...but... I peed!!!!!!!!!!!!!!!!!!!! Praise God!!! Hallelujah! I didn't post earlier but I DID pray for you I promise!! So glad you are peeing... I haven't been this happy about someone peeing since my cat was having urinary tract trouble.
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Post by nocturnaliridescence on May 13, 2016 20:43:02 GMT -6
Certainly an unusual thing to be happy about, but it's still great to hear! And like Dyp, I was praying but didn't make a post.
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Post by Deleted on May 13, 2016 20:49:51 GMT -6
And like Nocturnal and Dyp, I too was praying. Glad things are working out. Hopefully you can start peeing more easily soon.
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Post by Thomas Eversole on May 13, 2016 21:57:45 GMT -6
I haven't been this happy about someone peeing since my cat was having urinary tract trouble. My cat had that too. Cost me $3,000 for one night in the pet hospital... and he pulled his catheter and IVs out. But he can pee... I know $3,000 is more than most people would spend on a cat, but he's my son and I had to save my little boy's life. I've still been able to urinate consistently, but it's not exactly glorious. I've graduated out of the tub, but still have to squat and strain to make it happen. That straining of course makes my surgical wounds and ostomy angry. ...and is frustrating and makes me light headed. Everything I've read states that it gets better, but if I don't see any improvement by Monday, I'll probably WANT to get recathed.
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Post by Thomas Eversole on May 13, 2016 21:58:23 GMT -6
Thank you very much for the prayers guys. It means a lot and lowers my stress.
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Post by barabbas on May 13, 2016 23:27:02 GMT -6
Thank you, Lord, for the things we take for granted!
(I, too, am praying.)
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Post by Thomas Eversole on May 14, 2016 8:20:50 GMT -6
I still have to strain too much to pee and it's taking a toll. Went to ER and got another catheter placed. I really wish I didn't have to get these - they really hurt when they're put in.
How much does it hurt? My voice feels a little sore after doing back to back black metal vocal tracks for an hour or so. My voice is completely THROWN and RAW from screaming the 3 minutes it takes to put a catheter in. ...and that's with Urojet. (Lidocaine in the peehole before they shove in a hose the width of a number 2 pencil)
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Post by Bartimaeus on May 16, 2016 8:30:14 GMT -6
I'm sorry this has been such a prolonged ordeal for you Thomas. I am joining the others in praying. Cancer sucks!
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Post by Thomas Eversole on May 16, 2016 11:22:22 GMT -6
Thank you very much.
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Post by Kerrick on May 16, 2016 11:49:10 GMT -6
Been continuing to pray for you.
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Post by exo on May 17, 2016 20:48:39 GMT -6
Other than the urination issues, how is the rest of the healing process progressing?
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Post by Thomas Eversole on May 19, 2016 15:31:31 GMT -6
I'm progressing very slowly in healing from this.
In my oncology appointment today, they voiced that they would prefer to start my IV Chemotherapy in one month. While it's my decision, I'm leaning toward having the reversal surgery completed first. (Because of all the problems I've had with my ostomy. I don't want to put up with 6 more months of problems during chemo.)
Three major concerns: If there is an undetected/microscopic amount of cancer in my body, it will grow until I start chemo. They'll do a barium enema before the surgery to make sure there's no leak. If there is a leak, that could mean ANOTHER surgery to repair it, or I could have an ostomy for the rest of my life anyway. One side effect of the chemo is PERMANENT nerve damage in my hands, which could mean good bye to me being a drummer.
Prayers please. My anxiety is high because of this.
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Post by nocturnaliridescence on May 19, 2016 18:15:29 GMT -6
Keeping this in my prayers, Thomas.
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Post by Thomas Eversole on May 19, 2016 22:05:07 GMT -6
Thank you.
I've made a decision that I definitely want to do the surgery before chemo. It has to do with my quality of life. 6 months of chemo hell will be easier to go through if I'm not ripping bags off my stomach twice a day and I can eat a damn onion.
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Post by Kerrick on May 20, 2016 4:03:34 GMT -6
Praying!
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Post by Thomas Eversole on May 20, 2016 8:11:20 GMT -6
I got to thinking of a question last night.
They want me to do 6 months of chemo because there *maybe* undetectable microscopic cancer cells. ...but *maybe* also means there may not even be cancer there and it is really gone.
Why put myself through 6 more months of crap for something that may not even be there?
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Post by tolencual on May 20, 2016 10:29:27 GMT -6
It is your decision. Either way, we'll keep you in our prayers, that you'll be healed and back to working order, in Jesus' name.
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Post by exo on May 20, 2016 10:40:22 GMT -6
I got to thinking of a question last night. They want me to do 6 months of chemo because there *maybe* undetectable microscopic cancer cells. ...but *maybe* also means there may not even be cancer there and it is really gone. Why put myself through 6 more months of crap for something that may not even be there? Pretty sure the medical pros are just doing the whole "err on the side of caution" thing, given the possibilities and what it could mean if they don't, I'm not sure I'd disagree with their assessment......but I'm not the one going thru hell with the situation. Do what you must under the circumstances.
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Post by Thomas Eversole on May 20, 2016 10:44:19 GMT -6
I called my case manager for Health Alliance (that's my insurance) and I figured they wouldn't want to pay for something that's potentially unnecessary, but they're all for me getting the IV chemo. I used the analogy that a 6 month intense procedure for something that's not even there is like trying to hang up a picture on a wall with a sledgehammer. She described it that the surgery was the direct spray to kill wasps, but I need a wide spray (chemo) around the empty nests to make sure they don't come back. I can see the importance of it now, but I still think 6 months is too much spray. I know my wife will back me up on this too. I might try to negotiate 90 days or 4 months instead of half a year.
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Post by Thomas Eversole on May 21, 2016 9:01:16 GMT -6
Got my wound vac on this morning. (Holy Abbotoir, you PMed me about this) My wife mentioned it to my surgeon the last appointment I had and he was all for it.
I'm glad it will heal this wound faster, but it's weird. I've got to lug around this machine that does this goofy abstract beeping.
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Post by Bartimaeus on May 21, 2016 13:07:50 GMT -6
That's great to hear Thomas! I think you'll be much more comfortable and you'll be surprised how quickly you heal. Continuing to pray for your recovery. I agree with how your oncologist described chemo. Having to poop in a bag for two extra months is, in my opinion, preferable to having to have a liver or lung resection if, God forbid, the cancer returns.
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Post by Thomas Eversole on May 21, 2016 15:49:21 GMT -6
One thing I didn't mention, despite wanting me to start chemo right away, my oncologist won't start chemo as long as I have the open wound on my abdomen.
My surgeon is willing to operate with the wound as is. On top of the reasons I already mentioned, I'd rather take advantage of the downtime to get put back together than to wait for a wound to close and doing nothing in the meantime.
I appreciate the continued prayers.
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Post by Thomas Eversole on May 25, 2016 11:48:47 GMT -6
Dye to check where my colon was reattached is scheduled June 1st. Surgery to reverse the ileostomy is scheduled June 15th.
Good thing too. Going through a month's supply of bags in 3 days because they don't stick is too much to keep doing. I don't have skin around my stoma anymore. It's just meat and it's excruciatingly painful.
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Post by Kerrick on May 25, 2016 15:41:23 GMT -6
Will definitely continue to be praying for you before and after your upcoming surgery! Thanks for keeping us posted Thomas. I am praying for you.
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